LAL Solace Patient Community

LAL Deficiency (Lysosomal Acid Lipase Disease) & Wolman Disease patient support

Karen deJong's Discussions (8)

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Discussions Replied To (7)	Replies	Latest Activity
"Hi Mellissa. Its good to see more people with LAL defficiency. Our story is also h…" Karen deJong replied Dec 15, 2011 to Living with LAL Deficiency....now what?	3	Dec 15, 2011 Reply by Melissa Aguilar
"Hi Mary,Can you ask them another question as well? Can you ask them how much we kno…" Karen deJong replied Jul 26, 2011 to Later onset CESD- life goes on...	9	Apr 16, 2012 Reply by Melissa Aguilar
"Her doctors talked about her body treating 1 gram of fat like 15 grams. So... she s…" Karen deJong replied Jul 12, 2011 to Later onset CESD- life goes on...	9	Apr 16, 2012 Reply by Melissa Aguilar
"Thankyou for sharing your story. I am sorry for your loss. I had no idea that the…" Karen deJong replied Jun 11, 2011 to Diagnosis	6	Nov 30, 2011 Reply by Melissa Aguilar
"Allo, here is my attempt at commenting on diagnosis. We have read that it is very…" Karen deJong replied Apr 18, 2011 to Diagnosis	6	Nov 30, 2011 Reply by Melissa Aguilar
"thankyou for sharing Dakota's story." Karen deJong replied Apr 14, 2011 to What is your experience with LAL Deficiency?	7	Nov 30, 2011 Reply by Melissa Aguilar
"My little girl Amy is 19 months old. Most people don't notice there is anything wro…" Karen deJong replied Apr 12, 2011 to What is your experience with LAL Deficiency?	7	Nov 30, 2011 Reply by Melissa Aguilar