LAL Solace Patient Community

LAL Deficiency (Lysosomal Acid Lipase Disease) & Wolman Disease patient support

How is everyone doing?

Just wondering what the past few weeks has brought to your lives?

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Permalink Reply by Mary Pruitt on May 10, 2011 at 10:46am

The past few weeks have been tough. Our community suffered major damage from 6 tornadoes in one day. My two children and I were driving in the first one and had to seek refuge in a stranger's driveway. It was very scary. Then Mother's Day came. I missed Gage tremendously on Mother's Day. I spent the day thinking of how Wolman's Disease changed our lives. I was wishing so terribly that there had been someone to talk to while we were going through his diagnosis and treatment. But most of all, I thought of his smiling face and how I want to hold him again. My hope is that one day Wolman's Disease will be treatable so that no parent has to go through what we did!