We are working on getting something together for us all to send to our local media to get attention for rare disease day. Is anyone willing to help us pass this information along to local papers, news stations, etc? We need as much help as we can get to raise awareness of LAL Deficiency and all the rare diseases. THANK YOU!!!

Views: 105

Reply to This

Replies to This Discussion

This is a great idea and I think it will really help raise awareness for LAL Solace and Lysosomal Acid Lipase diseases!!

Reply to Discussion


© 2019   Created by SandorMax   Powered by

Badges  |  Report an Issue  |  Terms of Service