Rare Disease Day 2012

[Mary Pruitt]

The last day of February each year is designated Rare Disease Day. It is recognized in the United States, Europe and other places around the world. LALSolace was in it's beginning stages in February of this year so we were unable to develop a plan for the day. But...we have members now who are active and involved in this community and I really feel that we need to get out there and do something for Rare Disease Day 2012!!! On an individual level, I created a video of Gage and submitted it to the RDD website this year. But we have voices that need to be heard! Any ideas??? This disease has been too quiet for too long and we need to put voices and faces with it to raise awareness. Let's band together and do some great things! PLEASE don't hesitate to put your ideas out there:)