LAL Deficiency (Lysosomal Acid Lipase Disease) & Wolman Disease patient support
I just have a question. My son who is 6 is going to be starting the treatments soon. We just have to fill out our part of the paper work and also make sure we have all blood work and the other stuff done. So my question is there anyone here that has done the treatments yet?? I just kinda want to know what he will go through and how he might feel? I know everyone is different and it is a double blind study and i wont know what he gets till after 20 weeks. So i guess i just wanted to know what he will go through when this starts from someone who is going through it i guess.