Lisa G

Canada

Profile Information:

What brings you to LAL Solace?
Education, Support, Sharing, Research, All
Do you or someone you know have a LAL Deficiciency Disease?
Yes
If yes, who is effected by LAL Deficiency?
Child

Comment Wall:

  • Lisa G

    Hi there, apparently I missed your response. Please let me know if the link does not work. https://www.change.org/p/health-canada-approve-sebelipase-alfa-so-t...

    Thank you for your help, it is greatly appreciated.

    Feb 7, 2016

  • Brett B.

    Hi Lisa,

    You may have already received this information, but if not, from what I understand they Alexion is still working with the Canadian government on getting Kanuma approved in Canada.  The are and will continue to look for patients and families to speak about Kanuma and how it has affected patients in Canada.  I hope to hear more about the process soon.  As of now, I do not know what the timeline looks like.  

    Feb 27, 2016