Hi Sally! I am hoping to be a consultant with a company that has developed a therapy for LAL! I am an intense patient advocate and truly believe that every single patient deserves good treatment options even in the rarest of diseases. I am learning more and more about LAL- and from the bottom of my heart, I hope I have the opportunity to make a difference. In addition, if this does come to fruition- I will do anything I can to spread the word to patients and families to this website! I love seeing the community support- families and patients so desperately need to have a place to share stories and get more information. Best to you always! Pam