LAL Solace Patient Community

LAL Deficiency (Lysosomal Acid Lipase Disease) & Wolman Disease patient support

Yvette Reece Female Auckland New Zealand: Like

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What brings you to LAL Solace?: Education, Research

Do you or someone you know have a LAL Deficiciency Disease?: Yes

If yes, who is effected by LAL Deficiency?: Myself

Comment Wall (3 comments)

At 9:47am on November 8, 2011, Mary Pruitt said…: Hi Yvette, so glad you found the site and decided to become a member. Please feel free to share as much of your story as you feel comfortable with. Also, feel free to ask any questions you may have. We have a great medical advisor or you can speak to the group. I hope we can be of some help. Mary

At 7:51pm on November 10, 2011, Brett B. said…: Welcome Yvette, It is nice to see that you found the website. We have lots of resources available to us so do not hesitate to ask questions if you have any.

At 2:21pm on May 18, 2015, Alia Shaikh said…

Dear yvette,

As part of our ongoing work on Lysosomal Acid Lipase Deficiency (LAL D) Respondent Journey, Market Vision Research is working with Field Global to conduct research about how LAL D impacts patient’s life and how patient’s feel about the medical treatment for this condition. We are interested in patient’s opinions for “LAL D Respondent Journey” for research purpose only. I would like to reassure you that this study satisfies all requirements for a bona fide market research study; there will be absolutely no sales or promotion activities during or resulting from the discussion.

Please help us in this initiative to learn and evolve into a new & advanced medication which can drastically transform the lives of the diagnosed LAL D patients.

In appreciation of agreeing to participate (in case of a patient), following Incentive would be provided.

Patients would be provided with a token of 140 USD for successful interview through telephone.

If you have any questions, please contact us via e-mail at Alia.shaikh@fieldglobal.in

Thank you,

Alia Shaikh

|Your S. M. A. R. T. Research Companion||MULTI - Country Specialist - ASIA, Middle East, Europe & the US|

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