Hi James, welcome to the site. Have you been diagnosed with Cholesterol Ester Storage Disease? Would you mind if I ask our three medical advisors about your question regarding your liver issues? We will help you in any way we can. Thank you for sharing your story. Mary

Hi James, welcome to the site. LAL Solace has been blessed with finding medical advisors who are experts in LAL Deficiency.  I have been diagnosed with CESD.  I am open to share my family's and my experience with CESD.  I am currently participating in a clinical trial for CESD.  So far, I have seen some pretty impressive results.  I am willing to try to answer any questions that you may have for me.  Feel free to respond to this post or respond through my email.     

James, hope this finds you well.  I am the clinical science manager for Synageva in the SE.  We are about to open a Phase III clinical trial for CESD for our enzyme replacement therapy.  I would love to learn more about your situation if you care to share.  Tom Hopkins

Dear James,

As part of our ongoing work on Lysosomal Acid Lipase Deficiency (LAL D) Respondent Journey, Market Vision Research is working with Field Global to conduct research about how LAL D impacts patient’s life and how patient’s feel about the medical treatment for this condition. We are interested in patient’s opinions for “LAL D Respondent Journey” for research purpose only. I would like to reassure you that this study satisfies all requirements for a bona fide market research study; there will be absolutely no sales or promotion activities during or resulting from the discussion.

Please help us in this initiative to learn and evolve into a new & advanced medication which can drastically transform the lives of the diagnosed LAL D patients.

In appreciation of agreeing to participate (in case of a patient), following Incentive would be provided.

• Patients would be provided with a token of 140 USD for successful interview through telephone and 240 USD for Facility interview in New York.

If you have any questions, please contact us via e-mail at Alia.shaikh@fieldglobal.in

Thank you,

Alia Shaikh

Alia Shaikh|Team Lead- CATI|
| +91-9892326955| alia.shaikh29|www.FieldGlobal.com|

|Your S. M. A. R. T. Research Companion||MULTI - Country Specialist - ASIA, Middle East, Europe & the US|