June 2011 Blog Posts (1)

Study Opportunity

Synageva is currently studying the natural history of early onset (Wolman Disease) LAL Deficiency.  The information from this study is very important to the understanding of Wolman disease since it is so rare and there is no information summarized from large groups of patients available in the literature.  If you are interested in having your child’s data included in this study, please contact one of the active clinical study sites or the sponsor representative listed on … Continue

Added by Brett Billmeyer on June 20, 2011 at 3:31pm — No Comments

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