LAL Solace Patient Community
LAL Deficiency (Lysosomal Acid Lipase Disease) & Wolman Disease patient support
denise swindle's Likes
March 2012
Local Media
We are working on getting something together for us all to send to our local media to get attention for rare disease day. Is anyone willing to help us pass this information along to local papers, new…
Discussion
Local Media
1 Like
February 2012
Wolman Disease
Wolman
Disease or Early onset LAL Deficiency
Most people have never
heard of Wolman Disease. It is a very rare disease that
affects only 1-2 babies out of every million and is rapidly fatal
bef…
Page
Wolman Disease
1 Like
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