LAL Solace Patient Community

LAL Deficiency (Lysosomal Acid Lipase Disease) & Wolman Disease patient support

Mary Pruitt's Likes

September 2013

February 2012

Are you looking for a specialist for CESD? Hi everyone, I found this Powerpoint presentation on my doctors' website. He has 53 patients with CESD out of 300 (Late on-set-LAL Deficiency). If you live in New York I advise anyone with CESD to… Discussion Are you looking for a specialist for CESD? 1 Like IMG_0248

photo IMG_0248 1 Like

August 2011

LAL Community Reception

event LAL Community Reception 1 Like

July 2011

My Path to Being Diagnosed with CESD I was diagnosed with CESD approximately 3 years ago at the age of 38. Almost 20 years ago, I found out that I had elevated AST and ALT enzyme levels in the liver, but no one knew the cause. I have b… Discussion My Path to Being Diagnosed with CESD 4 Likes

June 2011

Natural History Study...We need YOUR help!

event Natural History Study...We need YOUR help! 2 Likes

May 2011

Rare Disease Day 2012