LAL Solace Patient Community
LAL Deficiency (Lysosomal Acid Lipase Disease) & Wolman Disease patient support
Brett B.'s Likes
April 2013
Research and Clinical Trials
The Lysosomal Acid Lipase Deficiency Registry
The LAL-D Registry is a place where your doctor can enter information about LAL-D patients' medical condition but with no identifying information.…
Page
Research and Clinical Trials
5 Likes
February 2012
WORLD Symposium 2012
Two weeks ago, Stephanie Dykes, Dakota's mom and our Board's secretary, and I travelled to San Diego for the WORLD Symposium. This was a conference dedicated to Lysosomal Diseases, such as…
Blog WORLD Symposium 2012 4 LikesNovember 2011
Rare Disease Day 2012
event
Rare Disease Day 2012
6 Likes
September 2011
August 2011
Rare Disease Day 2012
The last day of February each year is designated Rare Disease Day. It is recognized in the United States, Europe and other places around the world. LALSolace was in it's beginning stages in February…
Discussion
Rare Disease Day 2012
2 Likes
July 2011
Study Participants Needed
Synageva is currently studying the natural history of early onset (Wolman Disease) LAL Deficiency. The information from this study is very important to the understanding of Wolman disease since it i…
Discussion
Study Participants Needed
3 Likes
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