LAL Solace Patient Community
LAL Deficiency (Lysosomal Acid Lipase Disease) & Wolman Disease patient support
K Farrow's Likes
March 2014
Sebelipase Alfa Clinical Trial
It is hard to believe that it has been nearly three years since I started the Sebelipase Alfa clinical trial. Before I agreed to participate in the study, I made several phone calls to many of my ph…
Discussion
Sebelipase Alfa Clinical Trial
3 Likes
December 2012
My Path to Being Diagnosed with CESD
I was diagnosed with CESD approximately 3 years ago at the age of 38. Almost 20 years ago, I found out that I had elevated AST and ALT enzyme levels in the liver, but no one knew the cause. I have b…
Discussion
My Path to Being Diagnosed with CESD
4 Likes
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