November 2013
Resources
NORD - <a href="http://www.rarediseases.org">http://www.rarediseases.org</a>
The National Organization for Rare Disorders (NORD), is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" disease…
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Resources
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October 2013
Research and Clinical Trials
The Lysosomal Acid Lipase Deficiency Registry
The LAL-D Registry is a place where your doctor can enter information about LAL-D patients' medical condition but with no identifying information.…
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Research and Clinical Trials
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