LAL Solace Patient Community

LAL Deficiency (Lysosomal Acid Lipase Disease) & Wolman Disease patient support

Melissa Aguilar's Likes

April 2012

Our First Giveaway! We have LAL Solace bracelets! I will be happy to mail free bracelets to the 1st 10 people who respond! Just provide your name and address and how you are affected by LAL Deficiency. Discussion Our First Giveaway! 5 Likes

February 2012

WORLD Symposium 2012

Two weeks ago, Stephanie Dykes, Dakota's mom and our Board's secretary, and I travelled to San Diego for the WORLD Symposium. This was a conference dedicated to Lysosomal Diseases, such as…

Blog WORLD Symposium 2012 4 Likes

December 2011

Research and Clinical Trials The Lysosomal Acid Lipase Deficiency Registry The LAL-D Registry is a place where your doctor can enter information about LAL-D patients' medical condition but with no identifying information.… Page Research and Clinical Trials 5 Likes Later onset CESD- life goes on... It is amazing how much difference a little bit of Lysosomal Acid Lipase can make. There is such a huge difference between Wolmans and the later onset CESD. Amy has been on a very low fat diet for a… Discussion Later onset CESD- life goes on... 2 Likes Rare Disease Day 2012

event Rare Disease Day 2012 6 Likes

November 2011

Melissa Aguilar