LAL Solace Patient Community
LAL Deficiency (Lysosomal Acid Lipase Disease) & Wolman Disease patient support
Karen deJong's Likes
February 2012
WORLD Symposium 2012
Two weeks ago, Stephanie Dykes, Dakota's mom and our Board's secretary, and I travelled to San Diego for the WORLD Symposium. This was a conference dedicated to Lysosomal Diseases, such as…
Blog WORLD Symposium 2012 4 LikesSeptember 2011
August 2011
My Path to Being Diagnosed with CESD
I was diagnosed with CESD approximately 3 years ago at the age of 38. Almost 20 years ago, I found out that I had elevated AST and ALT enzyme levels in the liver, but no one knew the cause. I have b…
Discussion
My Path to Being Diagnosed with CESD
4 Likes
May 2011
Rare Disease Day 2012
event
Rare Disease Day 2012
6 Likes
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