LAL Solace Patient Community
LAL Deficiency (Lysosomal Acid Lipase Disease) & Wolman Disease patient support
Lisa G's Likes
August 2015
Sebelipase Alfa Clinical Trial
It is hard to believe that it has been nearly three years since I started the Sebelipase Alfa clinical trial. Before I agreed to participate in the study, I made several phone calls to many of my ph…
Discussion
Sebelipase Alfa Clinical Trial
3 Likes
July 2015
Rare Disease Day...Getting the Word Out!
Next week, on February 29 it will be Rare Disease Day! A day to recognize those of us who have been touched by a rare disease. And with LAL Deficiency, we certainly quality for a rare disease! Our…
Blog Rare Disease Day...Getting the Word Out! 1 Like
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