LAL Solace Patient Community
LAL Deficiency (Lysosomal Acid Lipase Disease) & Wolman Disease patient support
Past Events (7)
October 6Friday
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test
October 6, 2017 all day – ahmedabad this is for testing Organized by John Buchmuller | Type: test
October 3Thursday
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LALSolace Webinar/Teleconference for ALL members!
October 3, 2013 from 7pm to 8pm – online/phone We are going to be hosting our first ever Community webinar/teleconference. We will have story/experience sharing, medical info updates and plenty of time for questions and concerns! More info will c… Organized by Mary Pruitt | Type: webinar/teleconference, for, all, members!
February 29Wednesday
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Rare Disease Day Events!
February 29, 2012 to March 1, 2012 – Washington, DC Area http://www.fda.gov/ForIndustry/DevelopingProductsforRareDiseasesConditions/OOPDNewsArchive/ucm277194.htm Organized by FDA and NIH | Type: rare, disease, day, events
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Rare Disease Day 2012
February 29, 2012 all day – Global February 29th 2012 will mark the fifth International Rare Disease Day coordinated by EURORDIS and organized with rare disease national alliances in 25 countries. On that day hundreds of patient organ… Organized by Mary Pruitt | Type: virtual
September 22Thursday
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LAL Community Reception
September 22, 2011 from 6pm to 7pm – New York City An event to honor the LAL Community on September 22, 2011 in New York City. Bringing together key physicians, medical professionals, patients, patient advocates and genetic counselors. Time to be ann… Organized by | Type: community, reception
June 27Monday
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Natural History Study...We need YOUR help!
June 27, 2011 at 6pm to September 1, 2011 at 7pm – Everywhere Synageva is currently studying the natural history of early onset (Wolman Disease) LAL Deficiency. The information from this study is very important to the understanding of Wolman disease since it i… Organized by Mary Pruitt | Type: study
February 28Monday
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Rare Disease Day
February 28, 2011 all day – Worldwide February 28th 2011 will mark the fourth International Rare Disease Day coordinated by EURORDIS and organised with rare disease national alliances in 25 countries. On that day hundreds of patient orga… Organized by | Type: global, virtual, event
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