LAL Deficiency (Lysosomal Acid Lipase Disease) & Wolman Disease patient support
October 3, 2013 from 7pm to 8pm – online/phone We are going to be hosting our first ever Community webinar/teleconference. We will have story/experience sharing, medical info updates and plenty of time for questions and concerns! More info will c… Organized by Brett Billmeyer | Type: webinar/teleconference, for, all, members!
September 22, 2011 from 6pm to 7pm – New York City An event to honor the LAL Community on September 22, 2011 in New York City. Bringing together key physicians, medical professionals, patients, patient advocates and genetic counselors. Time to be ann… Organized by | Type: community, reception
June 27, 2011 at 6pm to September 1, 2011 at 7pm – Everywhere Synageva is currently studying the natural history of early onset (Wolman Disease) LAL Deficiency. The information from this study is very important to the understanding of Wolman disease since it i… Organized by Brett Billmeyer | Type: study