LAL Solace Patient Community

LAL Deficiency (Lysosomal Acid Lipase Disease) & Wolman Disease patient support

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Discussions	Replies	Latest Activity
Diet for CESD patients Hi again!Could you please share diet details your doctors recommend you to follow? I will appreciate your replies. Regards, Tanya Started by Tatyana	3	Feb 27, 2018 Reply by Sara Salinas
I wait for the Kanuma treatment for more than 6 month in Hungary Hello Everyone, My name is Edina from Hungary. I have a 6 years old son, and he is LAL-D. We didn't start yet get Kanuma, because we wait 6… Started by Edina Pocsaji	0	Dec 23, 2017
Please share your knowledge about use of Kanuma Hi everyone!My name is Tatyana, I'm from Ukraine. 1.5 years ago my son was diagnosed CESD. Now he is almost six. In our country we were the… Started by Tatyana	0	Oct 20, 2017

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Latest Activity

Hi again!Could you please share diet details your doctors recommend you to follow? I will appreciate your replies. Regards, Tanya

Started by Tatyana

Feb 27, 2018
Reply by Sara Salinas

Hello Everyone, My name is Edina from Hungary. I have a 6 years old son, and he is LAL-D. We didn't start yet get Kanuma, because we wait 6…

Started by Edina Pocsaji

Dec 23, 2017

Hi everyone!My name is Tatyana, I'm from Ukraine. 1.5 years ago my son was diagnosed CESD. Now he is almost six. In our country we were the…