Edina Pocsaji
  • Female
  • Budapest
  • Hungary
Share on Facebook Share
  • Blog Posts
  • Discussions (2)
  • Events
  • Photos
  • Photo Albums
  • Videos

Edina Pocsaji's Friends

  • Sara Salinas

Edina Pocsaji's Discussions

I wait for the Kanuma treatment for more than 6 month in Hungary

Started Dec 23, 2017 0 Replies

Hello Everyone,My name is Edina from Hungary. I have a 6 years old son, and he is LAL-D. We didn't start yet get Kanuma, because we wait 6 months ago for a government accept the treatment. My son is…Continue


Edina Pocsaji's Page

Profile Information

What brings you to LAL Solace?
Do you or someone you know have a LAL Deficiciency Disease?
If yes, who is effected by LAL Deficiency?

Comment Wall (1 comment)

At 12:06pm on October 13, 2018, James Pollard said…

Good Day,

How is everything with you, I picked interest on you after going through your short profile and deemed it necessary to write you immediately. I have something very vital to disclose to you, but I found it difficult to express myself here, since it's a public site.Could you please get back to me on ( mrjamespollard@yahoo.com ) for the full details.
Have a nice day
Thanks God bless.

You need to be a member of LAL Solace Patient Community to add comments!

Join LAL Solace Patient Community


© 2020   Created by SandorMax   Powered by

Badges  |  Report an Issue  |  Terms of Service