LAL Solace Patient Community
LAL Deficiency (Lysosomal Acid Lipase Disease) & Wolman Disease patient support
Edina Pocsaji's Discussions
I wait for the Kanuma treatment for more than 6 month in Hungary
Started Dec 23, 2017 0 Replies 0 Likes
Hello Everyone,My name is Edina from Hungary. I have a 6 years old son, and he is LAL-D. We didn't start yet get Kanuma, because we wait 6 months ago for a government accept the treatment. My son is…Continue
Edina Pocsaji's Page
Profile Information
- What brings you to LAL Solace?
- All
- Do you or someone you know have a LAL Deficiciency Disease?
- Yes
- If yes, who is effected by LAL Deficiency?
- Child
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Good Day,
How is everything with you, I picked interest on you after going through your short profile and deemed it necessary to write you immediately. I have something very vital to disclose to you, but I found it difficult to express myself here, since it's a public site.Could you please get back to me on ( mrjamespollard@yahoo.com ) for the full details.
Have a nice day
Thanks God bless.
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