LAL Solace Patient Community

LAL Deficiency (Lysosomal Acid Lipase Disease) & Wolman Disease patient support

Nicole's Discussions (6)

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Discussions Replied To (6)	Replies	Latest Activity
"What amazing coverage! I had tears in my eyes watching knowing that although it is…" Nicole replied Jun 24, 2016 to News Story	5	Jun 24, 2016 Reply by Rebecca Trendy
"My son is 4 and has been on Kanuma since January. He has a port and receives the tr…" Nicole replied Jun 24, 2016 to Searching for information	14	Jan 11, 2017 Reply by Donna Lee
"Thank you, you have been so helpful. It has been nice hearing from someone who even…" Nicole replied Feb 6, 2016 to Introducing my family	19	Mar 11, 2016 Reply by Sara Salinas
"The payment of it completely overwhelms me, I have been told that it cost like $300,…" Nicole replied Feb 5, 2016 to Introducing my family	19	Mar 11, 2016 Reply by Sara Salinas
"Thats great to hear. My son had a port put in, and I use the numbing cream so he doe…" Nicole replied Feb 5, 2016 to Introducing my family	19	Mar 11, 2016 Reply by Sara Salinas
"My son is 4 1/2 and has Autism and LAL. He has his first treatment this past week.…" Nicole replied Feb 5, 2016 to Introducing my family	19	Mar 11, 2016 Reply by Sara Salinas