LAL Solace Patient Community
LAL Deficiency (Lysosomal Acid Lipase Disease) & Wolman Disease patient support
Lisa Diaz's Discussions
Pittsburgh, PA
Started Jun 19, 2017 0 Replies 0 Likes
Anyone here from Pittsburgh and doing treatment at the Children's Hospital?
Out of state move
Started this discussion. Last reply by John Buchmuller Oct 4, 2017. 1 Reply 0 Likes
We are currently doing treatment at the Children's Hospital here in TX. But, we are considering a move! A big one! Has anyone moved recently, I need pointers!!
Searching for information
Started this discussion. Last reply by Donna Lee Jan 11, 2017. 14 Replies 0 Likes
Our son (4 yrs) was diagnosed recently with LAL-D after 2 years of searching for answers. We are in Texas and they want to start treatment with Kanuba. Are there any families in TX that are currently…Continue
Lisa Diaz's Page
Profile Information
- What brings you to LAL Solace?
- All
- Do you or someone you know have a LAL Deficiciency Disease?
- Yes
- If yes, who is effected by LAL Deficiency?
- Child
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Comment Wall (3 comments)
Brett
Good Day,
How is everything with you, I picked interest on you after going through your short profile and deemed it necessary to write you immediately. I have something very vital to disclose to you, but I found it difficult to express myself here, since it's a public site.Could you please get back to me on ( mrjamespollard@yahoo.com ) for the full details.
Have a nice day
Thanks God bless.
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