LAL Deficiency (Lysosomal Acid Lipase Disease) & Wolman Disease patient support
9013 139th Street
Jamaica, NY 11435
LAL affects my life in a big way. I think about my children and when will be the last time I say goodbye to them. It affects my health. I am sick of being sick. I look forward to the day when I can have a normal life again.
Thank you for being so open with your story. I will mail you a bracelet next week!
Thank you Mary.
111 North Marion st
North Tonawanda ny 14120
LAL affect my 6 year old, who was diagnosed with it on october 10, 2012. He is my lil big man. No matter what he brings a smile to my face each and everyday. Everyone he meets falls in love with him. This is all new for my husband and I, are next step is treatment for it. So glad i found this site. Thank you mary!!
I will send you some next week! How many do you want/need?
3- 4 should be good. me and my husband want one for sure. I know my mom and sister mentiond they were interested in one to. But if not its ok. Thanks!!!
Thank you so much for the Bracelets!!! Everyone one i run into asks what it is for. Tristan wantd one but it was way to big for him lol. Thank you again for everything!!!
So glad you got them!