LAL Solace Patient Community

LAL Deficiency (Lysosomal Acid Lipase Disease) & Wolman Disease patient support

Our First Giveaway!

We have LAL Solace bracelets! I will be happy to mail free bracelets to the 1st 10 people who respond! Just provide your name and address and how you are affected by LAL Deficiency.

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Replies to This Discussion

Permalink Reply by Melissa Aguilar on April 13, 2012 at 1:38pm

Melissa Aguilar

9013 139th Street

Jamaica, NY 11435

LAL affects my life in a big way. I think about my children and when will be the last time I say goodbye to them. It affects my health. I am sick of being sick. I look forward to the day when I can have a normal life again.

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Permalink Reply by Mary Pruitt on April 14, 2012 at 8:36pm

Thank you for being so open with your story. I will mail you a bracelet next week!

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Permalink Reply by Melissa Aguilar on April 16, 2012 at 8:50am

Thank you Mary.

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Permalink Reply by Holly Hume on October 12, 2012 at 6:24pm

Holly Hume

111 North Marion st

North Tonawanda ny 14120

LAL affect my 6 year old, who was diagnosed with it on october 10, 2012. He is my lil big man. No matter what he brings a smile to my face each and everyday. Everyone he meets falls in love with him. This is all new for my husband and I, are next step is treatment for it. So glad i found this site. Thank you mary!!

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Permalink Reply by Mary Pruitt on October 12, 2012 at 9:23pm

I will send you some next week! How many do you want/need?

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Permalink Reply by Holly Hume on October 13, 2012 at 1:51pm

3- 4 should be good. me and my husband want one for sure. I know my mom and sister mentiond they were interested in one to. But if not its ok. Thanks!!!

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Permalink Reply by Holly Hume on October 21, 2012 at 3:44pm

Thank you so much for the Bracelets!!! Everyone one i run into asks what it is for. Tristan wantd one but it was way to big for him lol. Thank you again for everything!!!