Margi moakes

Female

United Kingdom

Profile Information:

What brings you to LAL Solace?
Sharing
Do you or someone you know have a LAL Deficiciency Disease?
Yes
If yes, who is effected by LAL Deficiency?
Child

Comment Wall:

  • Mary Pruitt

    Thank you for joining Margi. I have seen Lili's page before. She was such a beautiful baby! I lost my son Gage on July 7, 2009 from Wolman's Disease after he had a bone marrow transplant. Please feel free to ask questions and share as much as you feel comfortable. We also had a very long diagnosis time. It took three months for a diagnosis. Our hope is to get this information out to the doctors and families as quickly as we can. Thank you again for being part of LALSolace, Mary
  • ♥KALUBS MOMMY♥ JACKIE BAKER

    HI MARGI, HOW ARE YOU DOING? THANKS FOR THE INVITE TO THIS SITE...IM GLAD TO BE ABLE TO BE A PART OF IT. IT BRINGS A LIL COMFORT KNOWING THERES A POSSIBILITY THE DOCTORS ARE ABLE TO SAVE A BABIES LIFE NOW♥