Hi Mary, its so nice to be able to get in touch with you. I have many questions to ask you I was hoping you could help me. Brittany;s Grandfather and I are tying to help her, but do not have any resources. She is doing well, she will see her doctor in April, to see what her next step is. She is working part-time because she gets very tired easily even a part-time job wipes her out. She wanted to go to cosmetology school but cannot afford to pay for it and the only grants we can find will only pay for school if she goes full time and she has to work to pay for her health insurance which is a joke and bases her benefits on her father's salary. Medicaide said she is not eligible until she is 21 years old and struggles to pay for her $500 per month premiums. Due to the LAL and the fact that she is always tired, it is becoming harder for her to continue working even part time.
I guess what we are looking for is some guidance. Are you aware of any resources that might be able to help us? My husband is trying to find grants to apply for which might pay for her school and health insurance. We thought of you and were hoping that through your network of contacts, that you might know somewhere for us to look.
I will e-mail you my phone number (I don't know how secure this site is) so that when you get a chance you can call me. I would really like to speak to you about all of this and I am looking forward to hearing from you.
I also hope that the issues you mentioned are resolved and everyone is well.
As part of our ongoing work on Lysosomal Acid Lipase Deficiency (LAL D) Respondent Journey, Market Vision Research is working with Field Global to conduct research about how LAL D impacts patient’s life and how patient’s feel about the medical treatment for this condition. We are interested in patient’s opinions for “LAL D Respondent Journey” for research purpose only. I would like to reassure you that this study satisfies all requirements for a bona fide market research study; there will be absolutely no sales or promotion activities during or resulting from the discussion.
Please help us in this initiative to learn and evolve into a new & advanced medication which can drastically transform the lives of the diagnosed LAL D patients.
In appreciation of agreeing to participate (in case of a patient), following Incentive would be provided.
Patients would be provided with a token of 140 USD for successful interview through telephone.
Mary Pruitt
Great question! Let me ask our medical board and get back with you ASAP!!!
Oct 12, 2012
Dena Funderburk
Hi Mary, its so nice to be able to get in touch with you. I have many questions to ask you I was hoping you could help me. Brittany;s Grandfather and I are tying to help her, but do not have any resources. She is doing well, she will see her doctor in April, to see what her next step is. She is working part-time because she gets very tired easily even a part-time job wipes her out. She wanted to go to cosmetology school but cannot afford to pay for it and the only grants we can find will only pay for school if she goes full time and she has to work to pay for her health insurance which is a joke and bases her benefits on her father's salary. Medicaide said she is not eligible until she is 21 years old and struggles to pay for her $500 per month premiums. Due to the LAL and the fact that she is always tired, it is becoming harder for her to continue working even part time.
I guess what we are looking for is some guidance. Are you aware of any resources that might be able to help us? My husband is trying to find grants to apply for which might pay for her school and health insurance. We thought of you and were hoping that through your network of contacts, that you might know somewhere for us to look.
I will e-mail you my phone number (I don't know how secure this site is) so that when you get a chance you can call me. I would really like to speak to you about all of this and I am looking forward to hearing from you.
I also hope that the issues you mentioned are resolved and everyone is well.
Dena Funderburk
Mar 26, 2013
Alia Shaikh
Dear Mary,
As part of our ongoing work on Lysosomal Acid Lipase Deficiency (LAL D) Respondent Journey, Market Vision Research is working with Field Global to conduct research about how LAL D impacts patient’s life and how patient’s feel about the medical treatment for this condition. We are interested in patient’s opinions for “LAL D Respondent Journey” for research purpose only. I would like to reassure you that this study satisfies all requirements for a bona fide market research study; there will be absolutely no sales or promotion activities during or resulting from the discussion.
Please help us in this initiative to learn and evolve into a new & advanced medication which can drastically transform the lives of the diagnosed LAL D patients.
In appreciation of agreeing to participate (in case of a patient), following Incentive would be provided.
If you have any questions, please contact us via e-mail at Alia.shaikh@fieldglobal.in
Thank you,
Alia Shaikh
Alia Shaikh|Team Lead- CATI|
| +91-9892326955| alia.shaikh29|www.FieldGlobal.com|
|Your S. M. A. R. T. Research Companion||MULTI - Country Specialist - ASIA, Middle East, Europe & the US|
May 18, 2015