Rebecca Trendy

Female

Port Huron, MI

United States

Profile Information:

What brings you to LAL Solace?
All
Do you or someone you know have a LAL Deficiciency Disease?
Yes
If yes, who is effected by LAL Deficiency?
Child

Comment Wall:

  • Dorothy

    Hello Rebecca , Are the infusions done only if there is cirrhosis ? Do you have to get them as soon as you are diagnosed ?

    Feb 27, 2016

  • Rebecca Trendy

    I am not a doctor, but what I have learned about the liver is that cirrhosis has 4 stages. Stage 1 fatty liver, stage 2 scar tissue, stage 3 scar tissue with "bridges" and stage 4 is liver failure. I have 3 boys with stage 2, and 1 in stage 3. The liver can heal itself, but they never revert back stages. Plus, the only stage the Kanuma cannot help with is liver failure. So treatments would need to be started before stage 4. I would suggest the sooner treatments starts the better. My son, who in stage 3, was my biggest worry while we were waiting. We had to wait about 5 months and he is doing extremely well. We have only had blood work done after treatments, but they will have repeat CT scans this summer. Not sure yet when they will have repeat biopsies. I am sure a doctor could explain it a whole lot better. But I hope I helped! ☺

    Feb 28, 2016

  • James Pollard

    Good Day,

    How is everything with you, I picked interest on you after going through your short profile and deemed it necessary to write you immediately. I have something very vital to disclose to you, but I found it difficult to express myself here, since it's a public site.Could you please get back to me on ( mrjamespollard@yahoo.com ) for the full details.
    Have a nice day
    Thanks God bless.

    Oct 13, 2018