Melissa Aguilar

Female

Jamaica, NY

United States

Profile Information:

What brings you to LAL Solace?
All
Do you or someone you know have a LAL Deficiciency Disease?
Yes
If yes, who is effected by LAL Deficiency?
Myself

Comment Wall:

  • Brett B.

    Hi Melissa,  I am so glad that you have found this website.  Thanks for responding to my Path to Diagnosis wall. I have responded to you on the same page.  Please let me know if you have any questions.  I am very comfortable with sharing my history with Cholesterol Ester Storage Disease.  My goal is to continue to educate others about what I have been through before being diagnosed as well as what I have been going through since being diagnosed.  I have met some doctors who did not know anything about Cholesterol Ester Storage Disease and were not willing to do their homework.  I do know that there are several great doctors who have done lots of research on LAL Deficiency out in your area.  I have spent some time out in NYC and have met a quite a few doctors who are very passionate about finding a treatment for LAL Deficiency.   

    Nov 30, 2011

  • Dina Kalaty

    Hi Melissa.  I'm glad you have found this website.  I wish you well and let us know if there's anything we can help you with.

    Dec 2, 2011

  • Alia Shaikh

    Dear Melissa,

     

    As part of our ongoing work on Lysosomal Acid Lipase Deficiency (LAL D) Respondent Journey, Market Vision Research is working with Field Global to conduct research about how LAL D impacts patient’s life and how patient’s feel about the medical treatment for this condition. We are interested in patient’s opinions for “LAL D Respondent Journey” for research purpose only. I would like to reassure you that this study satisfies all requirements for a bona fide market research study; there will be absolutely no sales or promotion activities during or resulting from the discussion.

    Please help us in this initiative to learn and evolve into a new & advanced medication which can drastically transform the lives of the diagnosed LAL D patients.

     

    In appreciation of agreeing to participate (in case of a patient), following Incentive would be provided.

     

    • Patients would be provided with a token of 140 USD for successful interview through telephone.

     

    If you have any questions, please contact us via e-mail at Alia.shaikh@fieldglobal.in

     

    Thank you,

     

    Alia Shaikh

     

     

    Alia Shaikh|Team Lead- CATI|
    | +91-9892326955| alia.shaikh29|www.FieldGlobal.com|

    |Your S. M. A. R. T. Research Companion||MULTI - Country Specialist - ASIA, Middle East, Europe & the US|

     

    May 18, 2015