lalsolace@gmail.com is my secure email so you can send any information directly to me. I can call you tomorrow afternoon if you would like. I do not know the answers to all of your questions...BUT I will do the best I can to find them! Mary
Hi Dena. I have a daughter who is 22 with CESD. It has been quite a challenge.. The doctor put her on a new diet which has been improving her health. I hope all is well with you and your daughter. Kari Flynn
Hi dena- I am working with patients and families in florida with the treatment for LAL D- have you or a family member been diagnosed? I'd love to chat with you! Best, pam
Mary Pruitt
lalsolace@gmail.com is my secure email so you can send any information directly to me. I can call you tomorrow afternoon if you would like. I do not know the answers to all of your questions...BUT I will do the best I can to find them! Mary
Mar 26, 2013
Kari
Hi Dena. I have a daughter who is 22 with CESD. It has been quite a challenge.. The doctor put her on a new diet which has been improving her health. I hope all is well with you and your daughter. Kari Flynn
Aug 27, 2013
Pamela Marcus
Sep 8, 2014