LAL Solace Patient Community
LAL Deficiency (Lysosomal Acid Lipase Disease) & Wolman Disease patient support
Sara Salinas's Discussions
High liver enzimes with treatment
Started this discussion. Last reply by Sara Salinas May 22, 2016. 2 Replies 0 Likes
Hi,My daughter is receiving 18 months of treatment (Kanuma) as a clinical trial 1mg/Kg.At the moment, cholesterol (HDL/LDL) seems are normalized but the liver enzymes (ALT/AST) still are high.Some of…Continue
Sara Salinas's Page
Profile Information
- What brings you to LAL Solace?
- Other
- Do you or someone you know have a LAL Deficiciency Disease?
- Yes
- If yes, who is effected by LAL Deficiency?
- Child
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Comment Wall (3 comments)
Thanks for the feedback. He was approved as a member earlier today. I was hesitant to accept his membership for a few reasons,but approved him for now. I was advised that he sent out spam messages, so I deleted his membership a short time after he was approved. Unfortunately, there have been too many people trying to join only to send spam. Hopefully I can recognize these people before they are approved.
Once again, thanks for letting me know.
Brett
Welcome on my side :)
Its good sign are normalized the cholesterol
Well, give Time the liver :)
Dear Gabi,
Thanks for your words of encouragement.
We will continue to have patience and hope.
Regards
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