LAL Solace Patient Community

LAL Deficiency (Lysosomal Acid Lipase Disease) & Wolman Disease patient support

Lisa Diaz Female Victoria, TX United States: Like

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Pittsburgh, PA

Started Jun 19, 2017 0 Replies 0 Likes

Anyone here from Pittsburgh and doing treatment at the Children's Hospital?

Out of state move

Started this discussion. Last reply by John Buchmuller Oct 4, 2017. 1 Reply 0 Likes

We are currently doing treatment at the Children's Hospital here in TX. But, we are considering a move! A big one! Has anyone moved recently, I need pointers!!

Searching for information

Started this discussion. Last reply by Donna Lee Jan 11, 2017. 14 Replies 0 Likes

Our son (4 yrs) was diagnosed recently with LAL-D after 2 years of searching for answers. We are in Texas and they want to start treatment with Kanuba. Are there any families in TX that are currently…Continue

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What brings you to LAL Solace?: All

Do you or someone you know have a LAL Deficiciency Disease?: Yes

If yes, who is effected by LAL Deficiency?: Child

Comment Wall (3 comments)

At 10:16am on May 25, 2016, Brett B. said…: Hi Lisa, Welcome to LAL Solace. Please let us know if you have any questions or if there is anything that we can do to help.

Brett

At 10:23am on May 25, 2016, Lisa Diaz said…: Thank you!

At 12:14pm on October 13, 2018, James Pollard said…: Good Day,

How is everything with you, I picked interest on you after going through your short profile and deemed it necessary to write you immediately. I have something very vital to disclose to you, but I found it difficult to express myself here, since it's a public site.Could you please get back to me on ( mrjamespollard@yahoo.com ) for the full details.
Have a nice day
Thanks God bless.