Thank you for joining Margi. I have seen Lili's page before. She was such a beautiful baby! I lost my son Gage on July 7, 2009 from Wolman's Disease after he had a bone marrow transplant. Please feel free to ask questions and share as much as you feel comfortable. We also had a very long diagnosis time. It took three months for a diagnosis. Our hope is to get this information out to the doctors and families as quickly as we can. Thank you again for being part of LALSolace, Mary
HI MARGI, HOW ARE YOU DOING? THANKS FOR THE INVITE TO THIS SITE...IM GLAD TO BE ABLE TO BE A PART OF IT. IT BRINGS A LIL COMFORT KNOWING THERES A POSSIBILITY THE DOCTORS ARE ABLE TO SAVE A BABIES LIFE NOW♥
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