Margi moakes
  • Female
  • United Kingdom
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Profile Information

What brings you to LAL Solace?
Sharing
Do you or someone you know have a LAL Deficiciency Disease?
Yes
If yes, who is effected by LAL Deficiency?
Child

Comment Wall (2 comments)

At 4:29pm on June 5, 2011, Brett Billmeyer said…
Thank you for joining Margi. I have seen Lili's page before. She was such a beautiful baby! I lost my son Gage on July 7, 2009 from Wolman's Disease after he had a bone marrow transplant. Please feel free to ask questions and share as much as you feel comfortable. We also had a very long diagnosis time. It took three months for a diagnosis. Our hope is to get this information out to the doctors and families as quickly as we can. Thank you again for being part of LALSolace, Mary
At 9:16pm on June 5, 2011, ♥KALUBS MOMMY♥ JACKIE BAKER said…

HI MARGI, HOW ARE YOU DOING? THANKS FOR THE INVITE TO THIS SITE...IM GLAD TO BE ABLE TO BE A PART OF IT. IT BRINGS A LIL COMFORT KNOWING THERES A POSSIBILITY THE DOCTORS ARE ABLE TO SAVE A BABIES LIFE NOW♥

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