LAL Solace Patient Community
LAL Deficiency (Lysosomal Acid Lipase Disease) & Wolman Disease patient support
Margi moakes's Likes
July 2011
Study Participants Needed
Synageva is currently studying the natural history of early onset (Wolman Disease) LAL Deficiency. The information from this study is very important to the understanding of Wolman disease since it i…
Discussion
Study Participants Needed
3 Likes
Later onset CESD- life goes on...
It is amazing how much difference a little bit of Lysosomal Acid Lipase can make. There is such a huge difference between Wolmans and the later onset CESD. Amy has been on a very low fat diet for a…
Discussion
Later onset CESD- life goes on...
2 Likes
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