LAL Solace Patient Community

LAL Deficiency (Lysosomal Acid Lipase Disease) & Wolman Disease patient support

Daniel Massello Male Chicago, IL United States: Like

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LALD and Alopecia

Started this discussion. Last reply by Holly Hume Jul 25, 2014. 3 Replies 0 Likes

Has anyone had any side affects yet? I now have Alopecia Universalis where I've list all body hair....anyone think this is just a coincidence?DanContinue

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What brings you to LAL Solace?: All

Do you or someone you know have a LAL Deficiciency Disease?: Yes

If yes, who is effected by LAL Deficiency?: Myself

Comment Wall (2 comments)

At 5:40pm on April 6, 2014, Brett B. said…: Hi Daniel, Welcome to LAL Solace. Please do not hesitate if you have any questions about LAL Deficiency. We have access to the top doctors in LAL Deficiency.

At 6:09pm on April 6, 2014, Daniel Massello said…: Hi Brett,

I'm currently seeing a hepatologist at Northwestern Memorial Hospital in Chicago, IL. My workplace is also planning on having a fundraiser for me as well which is great!

I'd like to purchase some wristbands if there any left?

Thanks I look forward to speaking with you.

Dan