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LAL Deficiency (Lysosomal Acid Lipase Disease) & Wolman Disease patient support

jessica nelson Female Fountain, CO United States: Like

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my son

Posted on August 9, 2011 at 5:00pm 2 Comments 0 Likes

im jessica i lost my son in 2009 to wolmans at 4months and 20 days.. we didnt fine out he was sick till he was 2months it suck to lose a baby at 18 i didnt want that to help to me or my family is all i had no baby daddy, when my son got worse i didnt know what to do i was always in the hospital wit me till the day he passed i held him in my arms he passed in them till this day i still see him dieing in my arms..

Comment Wall (6 comments)

At 9:15pm on August 9, 2011, Brett B. said…: Hi Jessica, Welcome to the LALsolace website. I am so sorry to hear about the loss of your son.

At 2:19pm on August 10, 2011, KAMRAN KALATY said…: Hi Jessica. I'm sorry to hear about your loss. We also lost our daughter Sarina in 2009 to Wolman's. We'd love to hear your story.

At 2:24pm on August 10, 2011, jessica nelson said…: i didnt fine out my son was sick till he was 2months i was on my way to get him better befor he got real bad and passed away i was only 18 when my son was going through this...

At 2:28pm on August 11, 2011, Mary Pruitt said…: How did you know something was wrong with Jacob? We knew Gage was sick because he was vomiting a lot and he had a huge belly.

At 4:17am on October 17, 2011, Margi moakes said…: Hi Jessica. I lost my little girl Lili to Wolmans in Aug 2006. She was 8 and 1/2 months. She was only diagnosed with the disease 1 month before she died. I am sorry to hear of your loss. He was so sweet. Xx

At 4:04pm on December 1, 2011, Melissa Aguilar said…: Hi Jessica, thank you for sharing your story with us. I am sorry for your loss. Your angel was a beautiful little boy.